About drugs and rare diseases in Canada

Drugs for rare diseases are also referred to as orphan drugs in some jurisdictions. A rare disease is a life-threatening, seriously debilitating or serious and chronic condition affecting a fairly small number of patients.

Data and Resources

Additional Info

Field Value
Last Updated January 16, 2026, 20:55 (UTC)
Created January 16, 2026, 20:55 (UTC)
contains_pii non
criticality_level Élevé
data_formats HTML
fair_openness Level 2 - Machine-readable
geographic_scope Canada
sensitivity_level Faible
source_inventaire Inventaire_W
source_url https://open.canada.ca/data/en/dataset/45d8f449-cc3a-4413-942a-cacd23a81f5e
subject health_and_safety
update_frequency as_needed
year_most_recent 2023-11-01 21:01:05.857000
year_start 2023-10-30 21:12:28.350000